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Sickle cell gene therapies push health plans toward new payment models
The post Sickle cell gene therapies push health plans toward new payment models appeared on BitcoinEthereumNews.com. Starting in his early teens, Deshawn “DJ” Chow wasn’t sure he’d ever be able to live a normal life. Crushing pain episodes brought on by his sickle cell disease were getting progressively worse. “It’s just been hard skipping school and always being in and out of the hospital,” the 19-year-old said. “And just severe pain in … my head and my lower back.” When new sickle cell gene therapies were approved by the Food and Drug Administration just over a year ago, Chow’s adopted parents sought out City of Hope Children’s Cancer Center in Los Angeles to get him access to the new treatment. To their relief, the center accepted him as patient, and quickly secured authorization from the Chows’ employer-sponsored insurance. “They’re covering pretty much all of this [at] almost no cost out of pocket for us. So, we’re really grateful for those benefits,” said DJ’s dad, Sean Chow. “I’m amazed.” DJ Chow is one of a handful of the hospital’s patients who have been treated with Casgevy, the sickle gene therapy produced by Vertex Pharmaceuticals, which costs more than $2 million per patient. The treatment process involved multiple hospitalizations as well as chemotherapy treatments at additional cost over the course of the past year. Sickle cell is a blood disorder in which a person’s red blood cells become misshapen into crescent moons. It disproportionately affects Black people and causes severe pain episodes that can frequently land patients in the hospital. Chow is one of small number of patients to complete treatment with new gene therapies. After completing the full course of Casgevy treatments in January, he is starting to let himself dream about doing the things he’s always wanted to do. “Learn how to snowboard and surf and do all these things … experiences I never really…
The post Sickle cell gene therapies push health plans toward new payment models appeared on BitcoinEthereumNews.com.
Starting in his early teens, Deshawn “DJ” Chow wasn’t sure he’d ever be able to live a normal life. Crushing pain episodes brought on by his sickle cell disease were getting progressively worse. “It’s just been hard skipping school and always being in and out of the hospital,” the 19-year-old said. “And just severe pain in … my head and my lower back.” When new sickle cell gene therapies were approved by the Food and Drug Administration just over a year ago, Chow’s adopted parents sought out City of Hope Children’s Cancer Center in Los Angeles to get him access to the new treatment. To their relief, the center accepted him as patient, and quickly secured authorization from the Chows’ employer-sponsored insurance. “They’re covering pretty much all of this [at] almost no cost out of pocket for us. So, we’re really grateful for those benefits,” said DJ’s dad, Sean Chow. “I’m amazed.” DJ Chow is one of a handful of the hospital’s patients who have been treated with Casgevy, the sickle gene therapy produced by Vertex Pharmaceuticals, which costs more than $2 million per patient. The treatment process involved multiple hospitalizations as well as chemotherapy treatments at additional cost over the course of the past year. Sickle cell is a blood disorder in which a person’s red blood cells become misshapen into crescent moons. It disproportionately affects Black people and causes severe pain episodes that can frequently land patients in the hospital. Chow is one of small number of patients to complete treatment with new gene therapies. After completing the full course of Casgevy treatments in January, he is starting to let himself dream about doing the things he’s always wanted to do. “Learn how to snowboard and surf and do all these things … experiences I never really…
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